DaDaDaDaDa !!!!!!!!!!!!!!!

He says Dada FINALLY ............W were starting to get worried … I even posted on a message board I go to (we all had our babies in May) To see if he is the only one not saying it (he’s not)..... Well Low and behold he started babbeling DaDaDaDA~DaDaDa all day yesterday…..

Grandma comes to Visit !!!

Grandma got to spend the day over at our house visiting ...
Here We Are

Crackers

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He'll Take it with him !!

Rylan has figured out that he can takes things like the remote control with him as he crawls around ….It so funny watching him crawl around holding on to things… The look of accomplishment on his face is priceless…. His other fav to crawl with is a pair of his pants, they keep getting hung-up under his knees, he gives them a yank and a pull and ends up usually having to sit up to get them out from under his knees

He LOVES Cheese !!!!

Rylan absolutly LOVES cheese. He had it last week and again last night along with his first taste of tomato soup and grilled cheese sandwich...He hates jarred baby food.. So we are just moving on up to table foods...

Heres us On March 9th 2007

Rylans new Crib Toy

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Rylan and Daddy playing

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Not a Trophy~~Not A Ribbon LOL

This is what Rylan won...



I think I may pick up a ribbon from the dollar store to put on the free 8x10 we got for entering the contest...Stay tuned for a family picture.... Thats what I plan on using Rylans winning on .....

Rylan won 2nd Place

Rylan Won 2nd place in the local wal-mart baby contest....I am so proud of him.. Woohooo....... Its the picture of him with the fishing pole from above........
I am soo excited LOL.... Ok so what did he win........He won a $59.00 photo package... I knew my baby boy was cute ....The baby that won first place was wearing Angel wings so thats fine with me......Beings, I am mama to 3 real angels !!!!!!!

More Snow Day Pictures and Rylans Stats

Weight 21.8 lbs
length 28"
Head 18"
iron level 11.8

SNOWDAY !!!!!!!

Patty cake Bye Bye Boy Mommy Loves You ...

He PATTY~CAKES now AND waves BYE~BYE Started last week
Yesterday he said hi to our dog and then waved, I swear he really did !!!!!!

He is starting to show his independence by throwing little fits when he wants something that you take away from him ..It cute really it is LOL at least for now ….

He has his nine month doctor visit tomarrow.. I can’t wait to see how much he weighs now I making a guess of 22lbs …

I have heard the the docs like to do a iron check at this age and I think Rylan is going tol fail it ..He doesn’t like baby food to much yet and pretty much just gags and pukes on cherrios.. If he would eat rice cereal mixed with something other than milk that would be a big help for his iron levels… I am hoping that she will prescribe baby vitamins if he is low on iron at least till he figures out that he can get full on something other than milk J

Its been snowing off and on here for the past 3 or 4 days its so fun waking up to snow ….

He has a cold

Rylan had a little cough starting last Thursday.. It got worse friday and over the weekend has included a incredable snotty nose..Rylan changed it up last night and woke at 11pm 1:30 am 2:30 am 3:30 am 4:30 am 5:30 am...........Then Randy got up with him so i could sleep...... Managed to get him back to sleep at 8 am and his is still sleeping it 10:15.......... I of course woke up at 9 because he has trained me to only sleep for 3 hour streches at a time LOL.....

Bowling

Yesterday (Valentines Day and me and Randys 15 aniverrsery) The kids and I went bowling Rylan napped and we bowled...It was fun... Our video clips are to to the right....
Randy stayed home sick If I had know he was going to be home we would of stayed home but we already made the pl;ans :-(...I'm not sure if you all know he has had mono and now a cold on top of that...His doc (He went in on tuesday)has restricted him to only 30hrs a week of work....

My Poor Mobile Baby !!!!

Poor Rylan is getting battered over here since he has learned to crawl and pull himself up ..He now sports a almost black eye from falling on his little airplane ...a red welt mark on his forehead from falling by the sliding glass door and a red bump on the side of his head from a little stool he pulled on himself ....
Last night he forgot that he doesn't know how to stand without holding on to something(well he was holding a book) and fell face first on the floor ......
My poor little guy.... My heart just breaks when I hear him scream ....






I don't know how parents co-sleep with their children... Rylan sleeps in his room in his crib but I brought him into bed with me this morning, I usually nurse him in the rocker at night then stick him back in his crib but this morning I was tired and just wanted to go back to bed ....Well he fell asleep right away thatt was nice but then I was stuck, I didn't want to move and wake him up.... Boy That was uncomfortable.... I was very happy when he woke up 3 HOURS later LOL...My poor back ...

He crawls

Rylan started crawling last week ...Oh Boy he LOVES it LOL...I have been spending time chasing him around ...He now eats cheerios and gerber puffs ....His favorite food is still sweet potatos and turkey and he is working on getting a top tooth .....

Did I mention yet that he is starting to cruise around the furniture and his crib ....

January 24 Happy Birthday Andrew

WOW Andrew is 22 years old ..My gosh time does fly !!!! We went to walmart to see if he could find a good gift for himself but couldn't, so he is hanging on to his birthday dough for now....We met up with Mindi at wal-mart and she shopped around with us..... We then went to a really good Thi place and got the terriaki dinner to bring home ...Randy is still sick so that way we could have a birthday dinner together... for dessert we had cupcakes and ice cream...Andrew had a party last weekend at pizza and will have another party this coming weekend bowling with his friends.....


For Andrews birthday Rylan stood up in his crib all by himself for the first time..Randy and I were trying to get Andrews computer back working so he could look at his email birthday wishes (long story, we never did get it fixed hopefully today we will...) so he looked at them on my computer ) and I had sat Rylan in his crib for a little bit and went to see how things were going with Andrews computer I sat down and Randy went in to say hi to Rylan and just as he was walking in the door Rylan was pulling himself up...Randy was all hun come see and I ran in there and Rylan had this huge smile and was so proud of himself .Then he lost his balance and tumbled into the crib bar...... Poor baby

An Alligator from Florida

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Chele.. This ones for you !!!

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hmmmm....... See if this works

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Sweet Potatoes and Turkey

See it above ts post .

Rylan and Mindi

Rylan and Daddy

Heres Rylan and Randy......
Randy has been home sick ...My mom made me and Randy blankets and Randy is using my pink paper dolls one LOL..His poker one is in the bedroom... Anyways this is where Rylan likes to hang out when he is on the floor Randy hasn't held him to much in the last 2 weeks because we don't know if he is contagious....

My first try at putting a video file on

Here goes



Not the best but a start!!!!!

I just noticed that i have comments ......Gonna go read them LOL

He wants to pull himself up

For the past week or so Rylan has been trying to pull himself to stand ...Randy has been home from work sick and laying on the couch...... Rylan likes to hang out by daddy and pulls on daddys blanket and pretty much gets up on his knees.....

Mommy and Daddy as Babies

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Snow day

Rylans first snow day was January 16 ..We woke up to no snow and it started snowing very lightly about 9 am ….It kept snowing till afternoon we got about 21/2 inches ….Rylan laughed when he looked out the window when he saw it….But didn’t want to touch it once we went out to take his picture …..




Well me and Rylan have picked up a ring worm from some where in the last few weeks… ..Rylan likes to scratch me when he nurses, kinda like a kitten or a little puppy does when they nurse its very cute LOL and I thought he had scratched me a little hard in one place it was really burning and hurting for about a week ..Then when I was changing his diaper the other day I noticed a ring on his upper thigh and it dawned on me that we have ring worm ….. I have been putting medicine on us and it looks like we are clearing up …

January 12th 2007 He Sits~He Sits~He Sits !!!!

OMG …………He sits from laying on his tummy all by himself now …..I can not believe how fast Rylan in learning things and growing up….

By Sunday the 14th he was laying and sitting up over and over again and is even trying to pull himself to standing on the furniture ….

Rylans First Christmas

What a great Christmas it was .. We had Christmas dinner at our house ...I was busy in the kitchen all day and Rylan was busy being passed around and spoiled by Grandmas, Grandpas, Aunts Uncles, Cousins, brothers and his sister .....

The Accuser Becomes the Accused

Yep thats right Randy has been the one to say all along " We (((Well Me Because 'HE WOULDN'T DO SUCH A THING')) are not going to spoil the baby"
Hmmmm.....

I sent him to Toys-R-Us to pick up a exersaucer for Rylans Santa present and well I'm sure you have guessed by now, he came home with the most exspenceive one they had $120.00..

This is for something I was hoping to put in the bathroom for Rylan to play in while I take a shower LOL.......... Its so nice and he likes it so much we don't want to put it in the bathroom and its to big to be lugging all around the house, So next time I am at Toys R Us he is getting a cheapie for the bathroom......

Some Pictures from our trip

December 8th 2006
Getting caught up Finally LOL….
Our trip to Florida was great fun I spent the last half of our vacation with no voice. I picked up laryngitis somewhere along the way …. Randy put his back out and its still out …Andrew ended up with a blister on the bottom of his foot and had to take lots of breaks along with ibruprofin the last two days but all and all we had a great time and didn’t want to come home ..
Our room was really nice 2 bedrooms 2 bathrooms with a whirlpool tub in the masterbath That bath felt so good after walking I swear 20 miles a day Rylan loved getting in too…. I have a feeling he is going to love the water he already moves his legs like a froggie in the water its so cute ….

We spent our first day shopping at walmart for a pack and play for Rylan and food for us to stock the kitchen and we ate breakfast in our room every morning and also had dinner a few times and lots of snacks to munch on …..

The first few days in the parks we tried to not eat during the day but changed our tune after a couple of days and started bringing snacks with us but that only lasted a few days too and then we started eating at the parks during the days you need food walking that much and breastfeeding …

Here’s our itinerary and some picture from our trip Sorry there’s not more, but I started this blog entry on December 8th its now the 18th and I still haven’t had a chance to get through all the pictures I would like to put up and resize ….

Day 1 wal-mart

Day 2 Universal studios

Day 3 MGM

Day 4 Bush Gardens



Day 5 Seaworld

A Milk Buzz at Seaworld Watching the show BELIEVE




Day 6 Epcot



Day 7 Magic Kingdom





Day 8 Animal Kingdom



Day 9 Islands of Adventure

Day 10 Animal Kingdom (again)



On The plane heading home

We're Back !!!!!!!!!!!

Time to get caught up …….
Where ‘O Where do I start ……
OK …………………………………………..
We went to Florida from November 4th till November 15 and had a great time …Rylan , Andrew and me and Randy enjoyed the whole trip ….. We took over 1000 pictures and I am working on getting them organized and will be posting some along with details from our tip soon ,I hope…………..

Yesterday was Rylans First ThanksGiving we spent it at grandma Jessies house … We had a really nice time ……….
Before we left I was was giving Rylan some tylonal for teetheing and then was wiping his face, he was in his jump-a-roo and he jumped right while I was wiping and I poked his face with my thumb nail, he started screaming, I felt so bad and stated crying myself it was so sad .. I am not even sure where I poked him he doesn't have any marks, so I guess it wasn't to bad, but it broke my heart, my poor baby………

When we got home he had his first taste of sweet potatoes and loved them ….So far he has eaten carrots and squash rice cereal and now sweet potatoes…. He also has started drinking water out of a cup

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Rylan now has his two front bottom teeth…He cut the first one on Halloween and the second a few days later…….

MMMMMMmmmm,,,,,,,,, Rice Cereal

Oh boy its been too long since I have made an update …..
Rylan has been enjoying rice cereal for a week now ..Last Saturday I had him try it again and he LOVED IT it was like he had been eating for years and we caught it all on video …..



We have been going out geocaching every weekend and that has been a lot of fun and we are getting some much needed exercise…Its funny me and Randy have lived here all our lives (well him born here, me here since I was 4 years old ) and we are seeing things that we never knew were here, like the totem pole at the collage (that we both went to LOL) and some parts of parks and bike paths, all new to us ……



New things Rylan is doing are grabbing both feet to play with them ..Yelling, yeah he likes to yell instead of scream when he wants something, maybe even just because he likes the way it sounds.. Its really cute at least for now its really cute…I can picture myself in a few years having to say “Rylan that’s enough yelling “ ……
This little baby boy is such a joy to have around ..I would of never thought I could be so happy again …But I am …..and it feels GOOD……

Rylan you are salve for your mama’s soul !!!!!!!!!!!!

My Baby Found His Left Foot.....

This afternoon while me and Andrew were scrapbooking... I looked down and Rylan had a hold of his left foot( he was in his bouncy seat) He has continued to play with it the rest of the evening ....

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We went Geo caching all day saturday then to Target to buy a highchair a jumparoo and a bigger baby bathtub...
Rylan likes all three......

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We tried rice cereal yesterday morning he didn't want any part of it....I really thought he would like it he has been soooo interested in what we are eating ......

Geocaching Today

We went geocaching today before Randy went to work it was fun …Randy spotted all the caches before me, but in my defense I was holding and looking at the GPS unit while he got to look around and explore , Well except for when he had me get out of the car and look all by myself for one….. I didn’t find it, he did when he got out to look…….. Ok in my defense we were beside a very busy HWY and I get nervous…. I have seen the shows on TV of the cops getting hit while giving out tickets on the side of the road…Told Randy I don’t want to do any more where we have to park on the side of busy HWYS …We are going out this Saturday to find some more…. I am planning on packing a picnic lunch for us …



Rylan really enjoyed getting to ride in the pack thing and napped when in the car … Have I ever mentioned what a perfect baby he is ??

One of the caches was at the cemetery where Wyatt and the girls are buried and we seen a new headstone for a baby boy born November 22 2004 (Wyatt was due about that same time ) and Died December 10 ? 2005 It really made me sad and I wondered what happened, was he sick or was it a car accident , you know ,why, what happened …
I also wonder what it would have been like to have Wyatt for a year to really get to know him and then loose him .. Its so sad ……….

He Reaches and He grabs

Rylan is really starting to reach and grab for things and still loves to sit and look at his hands...

Another one of his favorite things is running in place while he is in his bouncy seat ....This kid cracks me up with the faces he makes while he is "running off" I just know I am in for it in a few months LOL .......

Who in the heck lived my life when I was on bedrest ? This is the very short condenced version of our past week.........

Gonna try to catch up as quick as possible

Last Wednesday
Rylans 4 month check-up and immunizations. He woke up with a cold the day before had no fever till when we got to his appointment, then had a small fever, so we had to do the urine culture……..
What a pain in the butt..They put a bag on him and I had to bring it back in as soon as he peed and if it was after hours take the pee to the hospital, of course he peed at about 4:30 so by the time I got back into town it was after 5 pm so I took it to the hospital….
His urine was ok....It was a long day, he ended up having fever of 102 that night from the shots and it took me till 10 pm to find out his urine was clear....
The hospital had lost the results ( they did call yesterday and say there was some bacteria but its probably from being bagged instead of a cathader and since his fever is gone he is probably fine)

He weighed in at 16 lbs 11 oz

Last Thursday was the funeral for Chris there were a lot of people that loved him there by far the largest funeral I have ever been to…

Friday
My friend Rena was having a yard sale si I brought over some baby things and maternity clothes and stayed till about 11 am then came home

Saturday
Went to a geocaching meeting and met some fellow geocachers… We can’t wait to get started on our new hobby….

Sunday
I know we missed church I think we just stayed home…

Monday
Shopping at wal-mart then got a call that my grandma was going to the emergency room….She’s ok now and will be seeing a heart doctor soon….

Tuesday
Finished the shopping we started Monday went to bed at about 7 and got a good nights sleep rylan only woke up once the eat and slept till 7:30 am ….

Today we received our GPS and we are hoping to find our first (on our own) Geocach tomarrow …

Project Roll Over was A Sucess

Sunday Rylan Rolled over on his own and we caught it on video..

Earlier in the morning Randy was doing floor time with him and did give him a little nudge at one point and he rolled ...

Then after Randy went to spend time with his friend whose son died..

My friend Joanna and her baby Josiah the one that shares Rylans b-day came over to visit..

We had the boys on the floor, Rylan almost rolled over then, but I stopped him, so Randy coud watch when he came home...

After Randy got home we got out the video camera put Rylan on his belly and he rolled over on his own within 30 seconds ...He hasn't done it again since ....

A Tragedy Saturday

Saturday a very good friend of Randys/ours... Only son/child 19 yrs old was killed in a motorcycle accident he went head on into a dump truck and was killed instanly...Its so sad and brings up so many emotions...The total devastation, its just heartbreaking...

IN TRAINING .................

For rolling over ..........

TUMMY TIME (Rylan hates it so it only lasts about 5minuts at a time ..



Look Blog Readers NO Swaddle


Rylan did OK his first night not swaddled, went to bed at 8:30pm and woke at 10:30pm then at 2am awake again. I left him in his bed he fell back asleep then awoke at 3am Daddy got him up to bring to mommy to eat Daddy said he was all smiles when he saw daddy......Then he woke again at 5:30 am Mommy tried the pacifer and he took it but still wanted to have a snack 5 minutes later ..We got up for the day at 8:30 am .....

A beautiful Voice

Rylan started sleeping in his big boy crib the night before last (Tuesday the 19th of September) he LOVES it he didn’t get up yesterday till 9am he had woke up to eat at 11pm and 5am (the Portland trip messed up our fancy little 3am feeding)
Today at 8 am me and Randy both awoke to the sound of Rylan talking up a storm with his fish mobile how darn cute it that…………….

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Seems that other babies Rylans age are already starting to roll over.. Tomarrow we are going to pick up some blanket sleepers and quit swaddling and start doing more tummy time...I think between being sick, having surgery and being swaddled it has put him a little behind..
Plus I am sure it doesn't help that, he is so cute and cuddley that I want to hold him every chance I get...I can't help it I am in LoVe....

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Randy did tractor work last Saturday and we already planted our grass seed…We have our in ground sprinkles and hope to put them in soon…
Check out our before and after pictures more to come soon as the grass sprouts…





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Sunday was spent at Rylans Grandma and Grandpa Js house, his Uncle Nick ,Aunt Margo and Colin, Megan and Caitlin came to visit from HI…They actually came by our house to visit the Thursday before we left for Portland too. It was a nice visit but to short as always …Anyway on Sunday we were having a great time and then it dawned on me I FORGOT to give Rylan his morning antibiotics (Septra)…So we had to leave early it was about 5 in the evening..I felt so bad poor Rylan ,Thank God he doesn’t have any signs of a kidney infection !!!!

Now I have my birth control pills right next to his medicine and I won’t take my pill till I have given him his Septra, my BCP are marked with the days of the week so at a glance I can know for sure of we have had our medicine for the day ,Brilliant I am so Brilliant… I let Randy know to ask me if Rylan and I have had our medicine, we don’t need me to end up pregnant and Rylan in the hospital, that’s for sure….

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One year ago today, I quit smoking, had to make sure that little blue line was for real first ….
Congratulations to me !!!!!!!!!!!!!!!

ONE YEAR AGO TODAY

YUP..One year ago !!!!!

LIFE is GOOD.........LIFE is BUSY !!!!!!!!

The title says it all....Hope to get a update post up soon ..Just wanted to let people know that all is well......

Life getting back to Normal

Rylan the day after we got home from his circumcision... Thank goodness for Tylonal with codine..



Do you all think he is going to fit in there for 2 more months ? LOL

We are Home

Packed up and ready to go



We didn’t get to stay at the Ronald McDonald house.. So onto the internet we went to get reservations for a room we again used priceline but had to pay $70.00 for the same motel we had last week for $55.00…

Our Motel



We got to our room about 5 pm then went and found exactly where we needed to go in the morning ..We have been up to OHSU quite a few times with Mindi and as a matter of fact that’s where Randy had his vasectomy reversal done…(Rylans doctor and Randys Vasectomy doctor are partners how’s that for a coincidence. Last week Rylans doctor told us that Randys doctor practiced doing reversals by sewing cigarette papers together without tearing them back in the 70’s LOL)



Then we ordered up some Chevys Mexican food, picked it up and ate at the motel, played with Rylan then off to bed about 9:30 …I place two wake up calls one for 12pm so I could feed Rylan and another for 3:45 am I planned those times because I didn’t want Rylan waking up wanting to eat at 2 or something and then not want to eat much at 4 am (he couldn’t eat after 4:30 am…..It worked perfect..
I kept Rylan awake after he ate because I knew if I put him back to bed he would want to eat soon As I woke him up..We left the motel about 6:30 am and arrived at the hospital at about 7:30 to get checked in…



We seen Rylans doctor in the hall and asked him on a scale of 1-10 how important is this to have done he said it was about a 7 …Randy and I decided to go ahead and have it done …We don’t want Rylan to go through what he did when he had his kidney infection ever again, although this doesn’t guarantee no kidney infections its supposed to reduce the risk quite a bit…I also thought maybe we could just wait and see if Rylan is infection free without it but the thought of him getting sick and having it done when he is older didn’t sound to appealing either…
Rylan went in for his sugary at about 8:30 am me and Randy went down to get some breakfast while we were sitting there eating it was about 9am and here comes the nurse that was going into surgery with Rylan….. Randy and I didn’t know what to think but our hearts stopped for a minute till she was able to tell us that we didn’t sign on of the papers (A consent for sugary)we needed too and they didn’t want to start with out it…. I don’t blame them after me and Randy having all out doubts about the circ. and questions for the doctor …Whew……….We signed she left and then we finished our breakfast and walked around the hospital for about a hour we had a pager the doc said it would take about 1 ½ hr it was scheduled for 2 hours but he didn’t think he would need that long…
We took the stroller with us, at first we had the covers open and people we looking at us kinda funny ..
So we closed it up while we walked around people would go ohhhhh when they seen the stroller and it felt like we were playing a joke on everyone… Heck I almost leaned down to talk to Rylan a couple of times, it’s the longest I have ever been away from him except for my on a trip to wal-mart while he was asleep and Randy was with him …..

Rylan came out of the surgery about 10:30 Doctor said he did very well and when he looked inside Rylans bladder everything looked good his bladder is smooth on the inside just like its supposed to be and that ureters look like the come into his bladder in the right place so he will probably be a good candidate for the procedure called deflux It the one where they put polymers in his ureters to keep the urine from going back up…he even gave us a picture of the ureters and the inside of Rylans bladder will scan them and put them up later……



Finally we were able to go into see Rylan about 15 minutes later My poor baby was still out of it and doing that nnnnn…..nnnnnnn…..nnnnnn…,.. sound My poor baby he had a iv in his hand and a diaper on and blankets covering him …The nurse showed us his pee pee and my heart was so sad for Rylan he has about 10 stitches …they are the kind that dissolve so we won’t have to put him through getting them taken out at least…. The one nice thing is that they put him to sleep using the gas mask so he didn’t have to feel them doing the IV… They had to try in a few different places at least twice in the foot that we could see and the one poke that worked in his hand …The nurses said the its harder to get blood or do IV’s in healthy babies because they are soo chubby.. …..They also said how much like the Gerber baby he looked and they loved his name that he was the first baby with the name Rylan they had seen….
..We told him we were there and talked to him for a while before I had the nurse help me pick him up …It so scary picking him up he was floppy and making that sound but we managed …



The nurses said he would have to be nursing well and peeing before we could leave ….We asked how long it usually takes babies to pee and they said it could take 4 to 5 hours Oh dear. We really didn’t think it would take Rylan that long ……
I decide to feed him and get him full so he could pee, I was surprised that he was ready to eat and did so well I knew he would be hungry but he just looked so out of it….We were still waiting for him to pee at 3:00pm We were worried and starting to get desperate we had already been up since 3:45 am and had a 5 hr trip back home to drive in a van with crappy headlights …
Why hadn’t he peed….



We tried laying him in his bed thinking maybe since we were holding him he couldn’t concentrate on peeing ..Then we tried putting on him coming home outfit then we tried putting his feet in warm water then nothing was working ..Rylan was getting puffy from all the IV fluids and the nurse took it out….Then Randy remembered the old radiologist trick that Dr Hudson had told him about … It involved pouring warm water on Rylans bladder..(( the nurse called the doc to make sure we could try it )) and we tried at first nothing was happening so the nurse massaged his bladder while pouring the water and about 5 minutes later waa…laa… Pee Pee ……..That was at 4:30 pm and we out of there and on the road by 4:45pm …..
Rylan slept the whole way home..They had also given him something called a coddle block it’s a shot in the base of his spine to numb things kinda like a epidural I am so glad he had that I felt bad having to strap him into his car seat…We arrived home about 10pm, fed Rylan, unpacked the van and got to bed about midnight..Rylan has been nursing more often and is doing really well..He has Tylenol with codeine for the pain and he hates it. I have to just give him a few drops at a time or his will spit it out …Even doing just a few drops at a time he still manages to save some up to spit out ….
All in all it wasn’t to bad and I am just glad to be home and that its over and we don’t have to worry about it …His next thing he will get done is a renal ultrasound in 4 months and then another VCUG in a year then the Dr. will decide what procedure Rylan will get ..There is also a 20% chance that he could outgrow it and not need any procedures ..So for now we are done and hopefully he not not get anymore kidney infections…… Oh yea he will still need to be on his septra antibiotics till his reflux has been fixed or he outgrows it ……..

Getting ready

Getting ready to leave for Portland Its 7:30 am I thought Rylan was waking up at 6:45 am I ran my boppy and water into the living room and turned on my little fireplace heater went back to get him and guess what, he was ASLEEP !!!!!!!!!!!
He is a little trickster sooo while waiting for him to wake up I finished packing his suitcase started some laundry made sure my advil bottle is full, checked my email and I was thinking about hoping in the shower but nixed that idea because I don’t want to have to
1. Nurse him in a towel while I am still wet (Its kinda cool this morning)
2. Listen to him cry while I get dressed

So now I wait ….Thought I would update my blog…

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Dear Rylan
We had a nice trip over to your Grandma Marys house yesterday to drop off Andrew….We stayed for lunch we had buffalo meat apple salad and regular salad I didn’t care too much for the buffalo daddy thought it was OK ….We stopped at the river to fee you on the way home then to wal-mart to pick up diapers and wipes for our trip to Portland …
I don’t want to go and me and daddy decided that we would talk with the doctor again to make sure that you really really really have to have this done …I know he is going to say yes……..
I am not sure why its so hard on me ….I mean yea it sad that you have to get it done, but Its really tearing me up inside, more that it probably should be …I will do anything to keep you safe… I just keep asking why you and why us….Its Just not fair….I am very thankful that its not some really horrible thing but after all that we have been through, it just seems like I am paying off some bad karmic debt at the expence of my chilren or something…..If that is the case, I hope I am paid up for good …….
7:45 and your still sleeping, I think I am going to go wake you up I want to give you a bath before we leave and we have to be ready to head out the door by 10:30 so if we get the Ronald McDonald room we can be there by 4:30 this afternoon………
Love MOM

This made me cry

THE FACES BEHIND THE NUMBERS.......

Is there a fine line between crisis and epidemic?????…

The most current statistics read. 1 in every 8 babies is born premature.

1 in every 28 babies is born with birth defects.

Approx 4000 of these babies lose their fight for life.

Many times I sit and think about these numbers, the statistics of a crisis that is still far too silent. The numbers are staggering. The facts are truly heartbreaking.

And the reality….

Means ….

Somewhere right now…..A couple is celebrating the news they are expecting a Baby, unknowing to them their world is about to change forever.

Somewhere right now…..Bililights are being turned on.

Somewhere right now…..A Mother is on total bed rest.

Somewhere right now…..Blood gases is being drawn from a tiny life.

Somewhere right now…..An expectant Mother is sicker than she has ever been before.

Somewhere right now…..Cryotherapy just began.

Somewhere right now…..An expectant Mother is lying in a hospital bed praying for more time.

Somewhere right now…..A baby is being diagnosed with IURG.

Somewhere right now…..Parents sit hypnotized watching a fetal monitor

Somewhere right now…..A Mothers water just broke many weeks too soon.

Somewhere right now…..A Mother is experiencing pre-term labor.

Somewhere right now…..Parents are decorating a nursery for a baby who will never be using it.

Somewhere right now…..A baby is being placed on high frequency ventilation.

Somewhere right now…..A Mother is watching an ultrasound realizing something is terribly wrong.

Somewhere right now….. A Mother’s baby just stopped kicking.

Somewhere right now….. Expectant parents is given no hope.

Somewhere right now…..A Mother is receiving medication in hope of keeping her pregnant.

Somewhere right now…..A toddler still wears a pulse oximeter.

Somewhere right now…..A Mother is lying in a hospital bed crying in fear of what is soon to come.

Somewhere right now…..A baby is receiving Surfactant Therapy.

Somewhere right now…..A mother is being forced to birth a still born baby.

Somewhere right now…..ADoctor is performing an emergency C-Section.

Somewhere right now…..A Mother is having an amniocentesis.

Somewhere right now…..An umbilical catheter is being inserted.

Somewhere right now…..A Mother is diagnosed with preeclampsia.

Somewhere right now…..A baby is being taken from it’s protective world, and placed in a very clinical environment.

Somewhere right now…..A Mother is standing next to a plastic box looking down helplessly at her baby, making deals with God.

Somewhere right now …..A baby is being baptized in a NICU.

Somewhere right now…..A neonatologist is painting a grim picture.

Somewhere right now…..A Parent never imagined they could feel this kind of heartache

Somewhere right now…..A parent lives in fear, of all they do not understand.

Somewhere right now…..A baby has just exceeded its parents insurance limitations.

Somewhere right now…..Regardless of the diagnosis a Parent refuses to give up hope.

Somewhere right now…..A Baby is receiving Nitric Oxide.

Somewhere right now…..A Baby is having a G-Tube inserted.

Somewhere right now…..A Baby is being given a diuretic.

Somewhere right now…..A Baby just crashed.

Somewhere right now…..An apnea monitor just alarmed.

Somewhere right now…..A Mother is frantically dialing 911 because her baby just stopped breathing.

Somewhere right now…..A Baby is being placed on echmo.

Somewhere right now…..A baby’s life hangs in the balance.

Somewhere right now….Parents are rooming in with their baby.

Somewhere right now…..Parents dreams of taking their Baby home is being shattered.

Somewhere right now…..A Mommy is longing to touch her baby, that is too fragile to tolerate her touch.

Somewhere right now…..A baby is being placed on a vent.

Somewhere right now…..Parents are looking for someone to blame.

Somewhere right now….A parent is signing consent to let their baby go.

Somewhere right now…..A mother is replacing bandages around her baby’s newest procedure.

Somewhere right now…..A Baby is being buried.

Somewhere right now….The pain, uncertainty, and fear has become more than a couple can bear.

Somewhere right now…..A Baby is graduating to a C-Pap.

Somewhere right now…..A Mommy is singing to her baby in a whisper.

Somewhere right now….A parent is being awakened by an apnea monitor.

Somewhere right now….Medical staff are trying to stabilize a baby.

Somewhere right now….A Mother is longing so much to hold her baby, it hurts.

Somewhere right now…..A parent is speaking to a medical supply company.

Somewhere right now…..A Baby is being bagged.

Somewhere right now….Parents are being medically trained to take their baby with special needs home.

Somewhere right now…..A baby is getting their heel stuck again today.

Somewhere right now…..A Mother is experiencing Kangaroo Care for the first time.

Somewhere right now…..A baby is experiencing tachycardia.

Somewhere right now…..A baby is getting their first bath in a plastic spit tub.

Somewhere right now…..A Babys nursery light remains off.

Somewhere right now….A nurse is inserting an IV in a baby’s tiny head.

Somewhere right tnow…..A central line is being inserted.

Somewhere right now…..A candle is being lit for a baby.

Somewhere right now…..A Mother is giving her child a breathing treatment.

Somewhere right now…..A family is having a picnic at a grave site.

Somewhere right now…..A home is being remodeled to accommodate a special needs child.

Somewhere right now…..Parents are walking out of a NICU for the last time with empty arms.

Somewhere right now…..A Parent is wondering what if???

Somewhere right now….A Mother is placing a teddy bear on a tiny grave.

Somewhere right now…..A Mother is awakening in tears from a nightmare.

Somewhere right now…..A child is being given Botox injections, in hopes of easing the effects of Cerebral Palsy

Somewhere right now…..An infection is developing around a central line.

Somewhere right now…..A respiratory therapist is adjusting pressure on a vent.

Somewhere right now…..A baby is going home after months in the NICU.

Somewhere right now…..A Baby’s feeds have just been stopped.

Somewhere right now…..A neonatoligist is sitting silently in prayer.

Somewhere right now….A Mother is feeling guilty.

Somewhere right now…..A Baby is experiencing Bradycardia.

Somewhere right now…..A Mother is walking into a NICU for the very first time.

Somewhere right now…..A small child is being fitted for leg braces.

Somewhere right now…..A Baby is enduring the examination for ROP.

Somewhere right now…..A Father is balancing a role of primary care giver to siblings at home, and work to allow Mom more time with her baby.

Somewhere right now…..A Mother is pumping breast milk to put down a feeding tube.

Somewhere right now…..Parents are searching for a pre-school that will accommodate their special needs child.

Somewhere right now….Siblings are being sent to stay with Grandparents for reasons they do not understand.

Somewhere right now…..Parents are trying to explain to a small child their sibling will never be coming home.

Somewhere right now…..A home is being remodeled to accommodate a wheel chair

Somewhere right now…..A family is living in hibernation to protect their Baby from the health dangers of the outside world.

Somewhere right now…..A Baby is being intubated.

Somewhere right now…..A parent is searching for some kind of normalcy.

Somewhere right now…..A parent is hearing their baby will be severely visually impaired.

Somewhere right now……A surgeon is operating on a heart the size of a strawberry.

Somewhere right now….Part of a baby’s intestines are being removed.

Somewhere right now….A parent is replacing monitor leads.

Somewhere right now….A child is playing as far as it’s oxygen tubing will allow.

Somewhere right now…..A parent is picking out a tiny casket.

Somewhere right now…..A shunt in being inserted into a tiny baby.

Somewhere right now…..Faces are being missed from a family gathering because of the health risk it poses to a Baby.

Somewhere right now…..A baby is aspirating.

Somewhere right now…..A Mother is deciding which one of her babies in the NICU needs her more.

Somewhere right now…..A Mother is too frightened to go home

Somewhere right now….. A NICU nurse is consoling a Mother.

Somewhere right now…..A Baby’s kidneys are failing.

Somewhere right now…..A child is being made fun of because they are different.

Somewhere right now…..A Mothers heart is breaking for them.

Somewhere right now…..A Baby is having a feeding study.

Somewhere right now….A mother is watching anxiously as her near 2 year old child takes its first steps.

Somewhere right now….A Mother is untangling her child from it’s oxygen tubing.

Somewhere right now….A child has just pulled out its g-tube.

Somewhere right now…..A parent sits anxiously awaiting test results.

Somewhere right now…..A baby is being extubated.

Somewhere right now….A Baby is having an echo cardiogram.

Somewhere right now…..A Surgeon is performing a lifesaving procedure.

Somewhere right now…..A Child is being fitted for hearing aids.

Somewhere right now….A Child is having a sweat test.

Somewhere right now….A baby is receiving a blood transfusion.

Somewhere right now…..A Mother is kissing her baby for the very last time.

Somewhere right now….A parent is inserting a feeding tube.

Somewhere right now…..A parent is feeling like they can’t go on.

Somewhere right now…..A Nurse is drawing blood from a tiny little vein.

Somewhere right now……. Grandparents watch helplessly.

Somewhere right now…..A parent is picking out frames for the new glasses their small child will be wearing.

Somewhere right now…..A child can only sit and watch children play.

Somewhere right now…..A Baby is being released to come with feeding tubes, oxygen, and monitors.

Somewhere right now…..A Mother is putting hearing aids on her Child.

Somewhere right now…..Parents are sitting with a Social Worker.

Somewhere right now…..Parents are holding a Memorial instead of a birthday party.

Somewhere right now ….. So many babies are enduring so much more, with some procedures surpassing the imaginable…..

Far too many.....................

Taking an overall average, the average person reads approx 200 words per minute. In the length of time it took you to read this.

7 Babies have been born premature

2 Babies have been born with a birth defect and

1 Baby is preparing to receive its wings.

Rylan the talker boy

Dear Rylan
You are growing so fast and getting so smart you are really cooing and talking up a storm Its funny if you are sitting your pretty quiet but soon as I stand you up on my lap you start talking to everything one of your favorite things to talk to is me and daddys picture on the wall, and when I take you into your bedroom (that you still don’t sleep in) to change your diaper its almost like you say hello to it defiantly an acknowledgment that you know its your room….

You also like to run in place you get those little legs going a mile a minute especially when you are excited. When were walking through Albertson’s the other day you were moving your legs slow like you were walking along side of me I just know daddy and me are in for it when you get mobile.

When you wake up in your bassinet you kick kick kick your legs that’s what wakes me up to feed you LOL… Daddy wants you to sleep in our room till you are 6 months old…. I don’t think you will fit in your bassinet that long and told daddy, his reply was you can scrunch up your legs you like sleeping froggy style anyways …We’ll see how long you fit in there….

Love mommy

Going back to Portland Sunday

We are heading back to Portland Sunday and Rylan will have his circumcision surgery Monday morning.. He is even going to have to get stitches …… I am so glad that I never took the opportunity to watch any of the circumcision videos on the internet… My heart is very sad for my baby boy…
I was very lucky to have found a website for another baby boy that had to have surgery by the same doctor that is doing Rylans and his mother emailed me to let me know what his recovery was like and it sounds like it shouldn’t be too bad …..

Rylan will not be able to eat after 4:30 in the morning and we check into the hospital at 7:30 am the surgery will start at 8:30 am.. Please keep him in your prayers You all know our luck with statistics and that really scares me, but this has to be done ….

We are hoping to stay in the Ronald McDonald house they don’t take reservations we just call Sunday morning and see if we will get a room then we have to be there to check-in by 4:30 in the afternoon…..
All the missed days of work for Randy and the gas, motels and food not to mention the medical cost are starting to build up so to able to stay somewhere for free would be a great thing for us……

Pictures from last weeks trip to Portland

Feeding the ducks with daddy our first stop for Rylan to eat on our way up



At the doctors office



A quick trip to Krispy Kreme on the way home

Home from Portland with mostly Good news

Home Again

Here’s a rundown of our trip to Portland to see Rylans new doctor (Pediatric Urologist) he was very knowledgeable explained everything very well and was easy to talk to both Randy and I liked him very much …
The good news is that Rylan reflux didn’t seem to be real concerning to the doctor … He even said that in 20% of cases in boys that it improves.
The left kidney that we were told was enlarged is actually a little on the small side but slightly swollen, again not real concerning but something to keep an eye on…
The bad news is that Rylan is now going to have to be circumcised. His reflux did not happen because he wasn’t circumcised. It’s just that with what he has ((The doctor called it cycling meaning that when Rylan pees half comes out and half goes up his ureters to his kidneys)) that means any little bacteria goes straight up in the kidneys and we need to keep as much bacteria out as possible…
Jeeze can you believe our luck out of all the baby boys that do get circumcised which is way more than don’t…Our baby has to have this problem and now we have no choice about it and have to get it done …
We also learned that his peepee is not strait, it’s twisted sideways
Soo next Monday we will be going to Portland again for the circumcision (and to fix the twist) we have gone past the point of having it done at a local doctors office. Rylan will have to be put under with anesthesia and will need stitches. We are planning on staying in Portland for the night after unless he is still a little doped up and looking like he will sleep a lot for the trip home….
The doctor said I could go back to using Johnson’s baby wash for Rylans baths……. I miss the smell so that’s going to be nice..
It already 8:30 pm I wanted to make a longer post but I am bushed and heading to bed.

Our Weekend

I am changing some things on my blog so if its looking funny that’s why....
I am going to try new codes and things …I am also going to start writing my blog as letters as Dear Rylan well at least I am going to see how that works out for a while …So here we go.

Dear Rylan this past weekend has been very busy we went to JC Pennys at the mall and had your pictures taken on Friday OMG you smiled in every one you are a big flirt and all the picture girl had to do is say your name tickle you with a feather duster and you were all hers ……I can’t wait till the 15th when we get to go pick them up…daddy really likes the one of me and you together and wanted a 10x 13 LOL I talked him out of it I know that all my flaws would show on a picture that big and I am a bit worried about how I am really going to look on a smaller picture but daddy likes it and I like daddy (smile)
After pictures we drove over to Les Swabs to see if our van tires needed balanced, no it didn’t need balanced, it needed new tires…The back left tire was starting to split {{{{{{{YIKES}}}}}}} glad we had that looked at before our trip to Portland ((I see daddy has reserved us a room through price line I want to see which one but daddy’s still sleeping and I don’t know the passwords to get in there))
After we bought or tires Grandpa John and grandma Mary took us to the Roadhouse grill for dinner you can toss your peanut shells on the floor there!!! It was really good and we came home with too full bellies …
Speaking of the ride home it took about an hour longer than usual because you all the sudden developed a strong dislike for your car seat (Hmmm that’s not good for our upcoming 5 hour car ride ) We had to stop 3 times first time I feed you and you we happy and smiling till you went back in your car seat ….second time we stopped by the river and soon as I took you out o0f your car seat you were happy but I fed you some more and we took pictures down by the river …soon as I put you in your car seat you started crying again I looked all over to see if some thing was poking you or something couldn’t find any thing …A few miles down the road we stopped again by a church to change your diaper and see if that would help Nope it didn’t your pretty much cried the whole way home I sat in the back with you and held your hand but it didn’t help… You did manage to fall asleep about 5 minutes from home………
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Saturday We went to a surprise anniversary party for your Grandma Jessie and Grandpa Joe It was a surprise for Grandma ..We had to wait down the road at the park and daddy called them and said we were broke down at fruitdale market and needed a jump-start daddy said I was getting frantic because of and how hot it was outside…. Poor Grandma Jessie was worried sick about you sitting in a broken down hot car ((Please God don’t let us really break down on the way to Portland) It was a great party and we again came home with really full bellies…….. Grandpa Joe said you are one of the best-behaved babies he has seen …… you didn’t fuss at all …

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Sunday we have stayed home all day relaxing and doing laundry, vacuuming, mopping and getting ready for our trip… I hate coming home to a messy house after going away .. It has taken me from since about 9 am this morning till now 6:30 PM to just get this post wrote up, no our house isn’t that big, I also spent time outside and watching some TV and making a new header for your blog anyways it has been a nice day …..Going to sign off for now …….

I love you

Love mommy

VCUG Picture

The pic should show up here if not try back in while

Appointment Moved up to Tuesday

We are going to Portland to the Pediatric Urologist this coming Tuesday September 5th at 9 am… That means we will leave either Sunday or Monday …
I had called this morning to check and see if they wanted us to come before the 26th I was wondering why they hadn’t called …Randys brother even called last night to see if they had moved his appointment up.. Good thing I called……..They did not received the fax from our doctor …..
I was kind of hoping that they would say “oh we see this a lot and as long as he is on the Septra it would be fine to wait till the 26th “no such luck for us… it really is scary to be able to be seen by a specialist so quickly… It makes me more worried..
But then again I really just want to get there and have him look at all the tests results and then tell us it is going to be fine and they can fix Rylan up easily and he will be good to go……….
We are picking up a copy of the tests on CD from the hospital here to take with us and will try to make a copy for us to keep if it works out I will post a picture of Rylans ureters so you all can see how swollen the one is That’s the one that really worries me By the size of it I think that they didn’t make the grades high enough and would put it up there at a 25 or a 50 I don’t know It just scares me… So we shall see .. I am really struggling to keep a positive attitude… Its so hard when you have been slammed so many times with bad news ………

No Phone calls yet...Dang It !!!!!

No Calls from the pediatric urologist yet I am thinking I will give them a call tomorrow ..
I am adjusting pretty well to the fact that my little guy is going to need surgery I mean WTH if its my kid seems there is going to be something that needs attention ..It really really sucks.....
I can almost hear people thinking “What’s so wrong with her that all her kids come out with birth defects or dead …
Someone and Randys work even asked him “Don’t you ever have good luck” Yea I know...... Its pretty sad ......

{{{{{{{{{{BUT}}}}}}}}}}}}

You should see this kid in real life he is about as freaking cute as a baby can get..Tonight I put him in his exersauser and he loved it, stood up and was reaching for the little steering wheel My camera batteries were charging so I didn’t get any still picture but did take some video….. I felt bad that I didn’t wait till tomorrow till daddy was here so he could watch him in it to..But I didn’t expect him to have such a great time in it.... I thought he was still too young...
But hey Daddy told me earlier that he had already tried him out in it …Hmmmm I hadn’t known that……….
Anyways back to how cute my kid is..... He giggled for his Grandma Mary and he is really figuring out his arms and hands this is him playing with the froggie Grandma Mary bought for him while he was still a newborn in the hospital
I am going to have to add the picture in the morning its late the camera is in my room and I am tired
It has crinkle paper in it and a rattle and Rylan loves looking into its big bulgy eyes …….My baby is cute… cute……. cute …..

Our Little GIGGLE Boy

On a better note Rylan is starting to giggle he will start by cooing and then be so pleased with himself he starts smiling and giggling its sooo cute ....
Also Randy went and picked up our paper tickets for Disney world from AAA on his way to work yesterday We are excited about going and hoping Rylans being sick doesn't make us have to postpone it...Poor Andrew has had it put off so many times already ........

Its Grade 4 and Grade 5

Doc just called and I called her back Rylan has Grade 4 reflux on one side and grade 5 on the other......She is faxing the reports up to Portland doc to see if our appointment needs moved up... She also said she was peeved at the ER doc....The other doc at her office (Blood draw doctor) the one that admitted Rylan to the hospital is the head of pediatrics and would be having a talk with ER doc ..
Also Blood draw doc called last night about Rylans urine they took a sample of at his VCUG and so far Rylans urine looks ok and they are still growing the culture I think he is fine though he has had no more temp since Sunday.....

Can you believe this.....Its like some bad story out of the bible namely JOB

If its not one thing its another ...Rylan is doing good through it all though, hardly even cried the first picture of him below is after they put in the cath, but before they filled him with dye he only cried when they filled his bladder up to force him to pee that’s also when the dye went up into his kidneys..
I am feeling much better after reading that its 98% fixable I still just wish it could of happened to someone else maybe that’s mean but its how I feel.... I am so tired of being the center of all the drama KWIM ...

QUOTED FROM ONE OF THE LINKS ON THE LEFT
How is reflux evaluated?

Children who are suspected of having reflux should have a renal ultrasound and a voiding cystourethrogram (VCUG). Based on these studies, reflux can be classified into five grades - grade 1 is the least and grade 5 is the worst. Mild degrees of reflux have a good chance of resolving spontaneously with age. Chances of resolution with high-grade reflux (grade 4-5, or reflux related to an anatomic problem such as a long-standing obstruction) are much lower.

VCUG

Rylan does have reflux it was very obvious from the test …Randy and I got to stay with Rylan and see the dye and how it flowed……..
The left side urter was huge compared to the right side and I am sure it’s a grade 5 the left side also had dye going up to the kidney but it wasn’t all bloated up …
Our doctor is supposed to be calling us in the next day or two to tell us what to expect next…….From what I have seen on the net it looks like surgery will be needed ….

Randy and I are crushed, but at least it looks like its fixable…

Here's some webpage links about it

http://www.pedisurg.com/PtEduc/Vesicoureteral_Reflux.htm

http://www.healthsystem.virginia.edu/uvahealth/adult_urology/vesicour.cfm